The Waiting Game

We have a new book to read- add it to the pile, right? This one is different. It is from the website AutismSpeaks.org, a wonderful program that sent me a book called The 100 Day Kit. As you can tell it is a guide to the first 100 days after diagnosis. I wont get into much detail, you can get it yourself if you are truly interested, but I do feel some parts are notable in this stage for me.

They openly discuss the many stages of grief for the 'First Step'. Just reading through that part almost sent me back to bed in tears thinking of the physical pain I still feel daily. I remembered throwing a library book across the room with so much anger at the words highly functioning. I still watch Daniel and think to myself  'Maybe we are all overreacting, he seems so fine'. So yes, I have to agree that grieving is The First Step.

Okay, so the hard part is over, right? Moving on to The Next Step. In all the books, article, pamphlets, and phone calls I have suffered through this is where I 'should be' in this process. Paperwork, setting up evaluations, becoming familiar with programs and facilities in my area, and knowing my insurance coverage like the back of my hand. You can go right ahead and just check all those off on the to do list. Like I said earlier, Mrs. Organization.

So now what?

Now we wait. We wait for services to start. Wait for paperwork to 'go through', wait for therapists to be assigned and openings in schedules for Daniel to get in. Wait, wait, wait. I hated waiting as a kid. It was always easier on adults to wait, or so I thought. Now I realize waiting sucks at any age. In the meantime we will do what we can at home and continue to grow stronger as a family.